Jennifer, a Harvard PhD student, was signing a check at a restaurant when she found she could not write her own name. Months before her wedding, she became progressively more ill, losing the ability even to sit in a wheelchair. When doctors told her it was “all in her head,” she picked up her camera to document the world of millions of patients medicine forgot. Canary tells the stories of Jen and Omar, newlyweds facing the unexpected, and four other families. Together, they fight to live in spite of the world’s most prevalent orphan disease.
Canary In A Coal Mine documents the stories of a group of Myalgic Encephalomyelitis (ME) sufferers, the film started life as a Kickstarter campaign aiming to get a total of $50,000 to make the documentary, in the end they received donations of over $200,000. The film is currently in post production and is expected to be released in 2017. WPHN is delighted that the that people are working so hard to bring attention to a little known disease and wish the film makers all the best.